Leading the Fight Against Thalassemia

Leading the Fight Against Thalassemia

Staten Island Chapter Golf Outing on April 28 Print E-mail
Written by Craig Butler   
Friday, 26 February 2010 14:38

February 26, 2010 - Want a swinging way to fight thalassemia? Come swing a few clubs at the Staten Island chapter's 2010 Charity Golf Outing on April 28.

Last Updated ( Friday, 26 February 2010 15:05 )
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Thalassemia is Subject of Blood Center Lecture Print E-mail
Written by Craig Butler   
Thursday, 25 February 2010 16:46

February 25, 2010 - "Switching Globin Genes On and Off: Lessons from Thalassemia" is the title of a lecture to be given Tuesday, March 2 at 4:00 p.m. at the New York Blood Center.

Last Updated ( Friday, 26 February 2010 14:58 )
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NHLBI, CDC Launch Surveillance and Research Program for Inherited Blood Diseases Print E-mail
Written by Craig Butler   
Thursday, 25 February 2010 14:04

February 24, 2010 - Medical researchers are developing a new surveillance system to determine the number of patients diagnosed with a family of inherited blood disorders known as hemoglobinopathies, including sickle cell disease, thalassemias, and hemoglobin E disease.

Last Updated ( Thursday, 25 February 2010 14:17 )
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Long Island Chapter Holds "Brunch at Tiffany's" March 21 Print E-mail
Written by Craig Butler   
Friday, 12 February 2010 16:52

February 12, 2010 - Time to don those pearls and that little black dress (ladies) or that to-die-for blazer (men) and hurry on to the Long Island chapter's blissful "Brunch at Tiffany's" on March 21.

Last Updated ( Friday, 12 February 2010 21:09 )
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Getting Cool for Cooley's Print E-mail
Written by Craig Butler   
Monday, 08 February 2010 18:54

February 8, 2010 - Q:  What is frozen on the outside, warm and cozy on the inside and a big help to CAF?

Last Updated ( Tuesday, 09 February 2010 20:08 )
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Thai Study Looks at Quality of Life in Children with Thalassemia Print E-mail
Written by Craig Butler   
Friday, 05 February 2010 15:31

February 5, 2010 - A study published online by BioMed Central Blood Disorders investigates the quality of life (QOL) among children with thalassemia in Thailand.

Last Updated ( Wednesday, 10 February 2010 15:00 )
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Videos from 9th Cooley's Anemia Symposium Print E-mail
Written by Craig Butler   
Thursday, 28 January 2010 18:58

January 27, 2010 - Videos of two presentations from the 9th Cooley's Anemia Symposium are now available for viewing.  The subjects are pulmonary hypertension and clinical trials.

Last Updated ( Tuesday, 09 February 2010 22:04 )
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They're Off! Westchester-Rockland's "Night at the Races" Leaves Gate March 6 Print E-mail
Written by Craig Butler   
Tuesday, 19 January 2010 19:49

January 19, 2010 - The odds are solidly in your favor that you will have a wonderful time at the Westchester/ Rockland chapter's "Night at the Races" on March 6.

Last Updated ( Tuesday, 19 January 2010 19:53 )
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Pulmonary Hypertension in Thalassemia Print E-mail
Written by Craig Butler   
Tuesday, 19 January 2010 14:19

January 19, 2010 - Pulmonary hypertension is a complication that occurs in some individuals with thalassemia.  (Although it can occur in both thalassemia major and thalassemia intermedia, it is considered by CAF Medical Advisory Board Chair Ellis Neufeld to be a big problem in adults with intermedia and of possible rising significance in adults with major as they age.)  Below, CAF speaks with Claudia R. Morris, MD, of Children’s Hospital and Research Center Oakland about pulmonary hypertension and thalassemia and about some current clinical trials in this area.  These trials, which include a multi-center Thalassemia Clinical Research Network trial,  are ongoing and are currently recruiting subjects.

Last Updated ( Friday, 29 January 2010 19:09 )
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Friends Run in Arizona Marathon for CAF Print E-mail
Written by Craig Butler   
Tuesday, 19 January 2010 16:14
January 16, 2010 -  Several college students who are participating in the Arizona Rock'n'Roll Marathon are using the opportunity to raise funds for the fight against thalassemia.
Last Updated ( Tuesday, 19 January 2010 16:31 )
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Suffolk Chapter Holds "Friend Raisers" Print E-mail
Written by Craig Butler   
Tuesday, 19 January 2010 15:23

January 19, 2010 - The Suffolk chapter of CAF has two "friend raising" activities coming up soon:  a Lunch/Indoor Putting Contest and a Super Bowl Sunday.

Last Updated ( Wednesday, 20 January 2010 15:18 )
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