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TAG Patient/Parent Conference
Disneyland Paradise Pier Hotel
Anaheim, California
June 24 - 25, 2011
| | TAG Conference Registration, Journal Form & Agenda
| | | Click here to download a pdf with the conference registration, journal ad form and agenda.
| | | If you would like information on being sponsored for the Conference, please download the information sheet by clicking here. |
A unique way to gather important new information about thalassemia while meeting other patients and parents who can relate to the specific challenges associated with thalassemia. Special room rates are available from June 21 - 27 for families wishing to extend their stay. The following link is for room reservations: Click here to purchase specially-priced Disneyland® Resort Theme Park tickets!! These special ticket prices are not available once you arrive at the Resort. Ticket store closes at 9:00 PM PST on June 23, 2011 so don't delay. Tickets are valid June 21 - July 4, 2011. Twilight tickets are NOT valid on June 21, 23, 26 and July 1, 4. 1-Day 1-Park tickets are NOT valid on June 23. An alternate option for accommodations is Castle Inn and Suites. For reservations go to www.castleinn.com or call 714-774-8111 and book directly with them by indicating special "TAG Rate " of $98 (online under comments or special request) and the rate will be adjusted to the special TAG Rate. Friday, June 24 7:00 - 9:00 p.m. - Welcome Social with Surprise Special Guest at Disneyland Paradise Pier Hotel
| | | AGENDA: TAG Patient/Family Conference, June 25, 2011
| 7:00 a.m. - 7:55 a.m.
| Registration and Breakfast
| | | | 8:00 a.m. - 8:10 a.m.
| Welcome by Laurice Levine | | | | 8:10 a.m. - 8:30 a.m.
| The Future of the Cooley's Anemia Foundation by Anthony Viola, CAF National President
| | | | 8:30 a.m. - 9:30 a.m.
| Comprehensive Care & Standards of Care
| Elliott Vichinsky, MD
| | | | | 9:30 a.m. - 10:30 a.m.
| Science of Blood Transfusion & Safety
| Yelena Ginzburg, MD
| | | | | 10:30 a.m. - 11:55 a.m.
| Iron Measurement and What It Means Chelation Options and Availability Chelation and Toxicity | John Wood, MD Thomas Coates, MD Ellis Neufeld, MD | | | | | 12:00 p.m. - 1:00 p.m.
| Lunch and Awards Honorees: Dr. Farid Boulad and Huythong Nguyen | 1:05 p.m. - 2:35 p.m.
| Track 1
| 1:05 p.m. - 1:35 p.m.
| Fertility and Thalassemia | Titi Singer, MD | 1:35 p.m. - 2:05 p.m.
| Endocrine Care
| Maria Vogiatzi, MD
| 2:05 p.m. - 2:35 p.m.
| Cardiac Care
| John Wood, MD
| 1:05 p.m. - 2:35 p.m.
| Track 2
| 1:05 p.m. - 1:35 p.m.
| Osteoporosis and Thalassemia
| Patricia Giardina, MD
| 1:35 p.m. - 2:05 p.m.
| Pain and Thalassemia
| TBA
| 2:05 p.m. - 2:35 p.m.
| Nutrition and Thalassemia
| Ellen B. Fung, PhD, RD
| 1:05 p.m. - 2:35 p.m.
| Track 3
| 1:05 p.m. - 1:35 p.m.
| Insurance Options
| Gargi Pahuja, MPH, JD
| 1:35 p.m. - 2:05 p.m.
| Transition of Care
| Janice Beatty, RN
| 2:05 p.m. - 2:35 p.m.
| Research Studies for Thalassemia
| TBA
| 1:05 p.m. - 2:35 p.m.
| Track 4
| 1:05 p.m. - 1:35 p.m.
| Gene Therapy
| Farid Boulad, MD
| 1:35 p.m. - 2:05 p.m.
| Stem Cell Transplant
| Mark Walters, MD
| 2:05 p.m. - 2:35 p.m.
| Bone Marrow Transplant
| Farid Boulad, MD
| 2:35 p.m. - 3:00 p.m.
| Coffee Break
| 3:05 p.m. - 3:30 p.m.
| Improving Adherence
| TBA
| 3:30 p.m. - 3:50 p.m.
| Enhancing Advocacy Skills
| Gina Cioffi, Esq.
| 3:55 p.m. - 5:00 p.m.
| Psychosocial - Patients/Adolescents/Siblings, Friends, S.O.'s/Parents/Doctors
| 7:30 p.m.
| Dinner and Closing Remarks Location: Festival Arena, Disneyland Park |
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