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Written by Administrator
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Tuesday, 19 August 2008 21:18 |
PRIVACY STATEMENT
Cooleysanemia.org has created this statement in order to demonstrate our firm commitment to your privacy. The following statement discloses the information gathering and dissemination practices for our web site, Cooleysanemia.org .
The Cooley's Anemia Foundation (CAF) appreciates the support of all individuals who utilize our Foundation and its website to further our goal of fighting the blood disorder thalassemia. CAF respects the privacy of each individual who contacts us. The following provides information on our privacy policy:
Information Types
When visiting the CAF website, we collect what is commonly called 'site usage data.' This information is NOT individually identifiable; rather, our server collects the domain name of each visitor and catalogs general information (e.g., the number of visitors to out site, which pages were viewed, how long did their visit last, etc.). This information is gathered together so that we can better manage our website.
CAF also sometimes acquires individually identifiable information ' but this is information which is obtained only when an individual opts to provide it. For example, when you make a donation, request materials or fill out another form or contact CAF for information, the information you provide CAF may be added to our database.
Individually identifiable information is used to provide you with information or to deliver the service you have requested. If you provide your postal address, telephone number or e-mail address to CAF, you may receive periodic contacts from us.
If you would like to change the way we contact you, please contact the National Communications Director, Craig Butler, at
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, (800) 522-7222 ext 204, or c/o Cooley's Anemia Foundation, 330 Seventh Ave. #900, New York, NY 10001.
Cookies
Our site uses cookies for remembering your site preferences. Cookies are sent back to this site only -- no information is provided to any entity other than the Cooley's Anemia Foundation. For more information about cookies and how they work, please see An Introduction To Cookies.
Registration Forms
Our site's registration form requires users to give us contact information (like name, e-mail, and postal address). Contact information from the registration forms is used to get in touch with the customer when necessary. This information will not be shared with third party organizations.
External Links
This site contains links to other sites. CAF is not responsible for the privacy practices or the content of such web sites.
Public Forums
This site makes features like chat rooms, forums, message boards, and/or news groups available to its users. Please remember that any information that is disclosed in these areas becomes public information and you should exercise caution when deciding to disclose your personal information.
Data Quality/Access
We give users the ability to change and modify information previously provided to us. To have such information changed, send e-mail to
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Sharing Information with Others
CAF does not share personal information with other outside sources.
Email Communications
We occasionally send out an email newsletter and direct email communications to CAF site visitors to highlight news, information and opportunities available from the Foundation. If you wish not to be included in such communications, please contact the National Communications Director, Craig Butler, at
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, (800) 522-7222 ext 204, or c/o Cooley's Anemia Foundation, 330 Seventh Ave. #900, New York, NY 10001.
Security
In order to prevent unauthorized access and protect our users' personal information, we strive to maintain physical, electronic and administrative safeguards to secure the information we collect online. For example, online contributions are processed using a secure server. This secure server software encrypts all information you input before it is sent to us. Furthermore, all of the customer transactional data we collect is protected against unauthorized access with the use of digital certificates.
Contacting the Web Site
If you have any questions about this privacy statement, the practices of this site, or your dealings with Cooleysanemia.org, contact
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Last Updated ( Tuesday, 19 August 2008 21:28 )
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